Disability life coaching is turning out to be just the balm columnist Brianna Albers needed to recall the importance of community in SMA.
Columnist Ari Anderson pays tribute to his mom, who excels at many roles, including advocate, manager, teacher, and caregiver ...
SMA gene therapy Zolgensma safely improved motor function in children with SMA who needed tracheostomy, a real-world study ...
Sixteen years after her daughter's diagnosis of SMA type 1, guest columnist Cherie Ehlert is no longer counting the months, ...
Columnist Helen Baldwin finds the perfect gift for her granddaughter's birthday, one of the many unexpected blessings in her ...
Columnist Connie Chandler writes about her family's tradition of baking and decorating holiday cookies, a project that SMA ...
Cherie Ehlert lives in Vancouver, British Columbia, Canada. She is a disability advocate and created “Charlie's Angels” to ...
FDA approved Itvisma, a one-time gene therapy for SMA patients ages 2 and older. Itvisma restores SMN protein, improving motor function and reducing treatment burden. A Novartis executive says the ...
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